Tag: autism hardship

Today I Cried…

Today I cried.. Today was hard.. Usually I am tough. I can take on the world. I am 100% That Warrior. Ready for any battle. But even the most seasoned warrior probably wakes up like “Really? I have to do this again?” Even the most seasoned warrior might question their path and consider settling down […]

No one told me a caretaker works this hard..

Let’s talk about the definition of “caretaker.” You are responsible for giving another person the best care possible despite their shortcomings. You are responsible for giving that person their “best life.” All of that sounds great and easy. But let’s break this down for how exactly the day goes. It is extremely taxing both physically […]

A Mom’s Day Never Ends

I am a full-time working mom, a stay-mostly-at-home mom, a caregiver, a wife, an advocate. That’s not to toot my horn or anything, it’s just what it is. And I highlight it in this post only to show what is required of a special needs parent. I have always been a working mom. There was […]

There’s a Foodie in all of us..

Raise your hand if you love food. Come on, don’t be shy. Food is many things. It can bring people together and make you feel better on a bad day. It can cure many ailments and the simple smell can make you feel “at home”. Well, Z is right there with you on all that. […]

Things I’ve Learned…

Just as Z has grown and progressed, so have I. It’s important to assess where you are at throughout your life and celebrate it. Embrace who you have become at all stages in your life. When I think back to pre-diagnosis and the couple of years following the diagnosis I feel sorry for the girl […]

Surviving Meltdown Mode..

Let’s talk about aggression and self-injurious behavior. This is not something that is often talked about within the Autism community. If it is, we definitely are not giving the REAL. Partly because people often dismiss it as simple “tantrums” or “bad parenting”. The other part is because it’s not always easy to talk about it […]

3am is the new Midnight..

Many kids on the spectrum have sleep issues and Z is one of these. It would be safe to say we have not had “normal” or even “satisfactory” sleep for 11 years. It is something we have worked on for years. We’ve tried pretty much everything. And yet it still plagues us and might do […]

Wanna Come Over?

A big part of your social network comes from hanging out at each other’s houses. Unfortunately, this is a challenge for our family. We find ourselves staying home most of the time due to it just being easier on everyone. Early on, we weren’t talking too much about exactly what living with Autism meant so […]