You’ve heard me say this over and over. If you have met one child with Autism, you have met ONE child with Autism. Some people may roll their eyes at this statement. But I am here to give proof this is 100% accurate. When we decided to have another child after Z, we knew the risks. We knew siblings […]
Tag: special needs advocacy
Let’s talk about it…
The hard times. They impact our lives so greatly yet are the least talked about out loud. Why is this? Why do we hold back? Are we afraid of judgment? Are we afraid people will not believe us? Do we not want to relive the moments? Are we sugar-coating our experience? I don’t know. It’s […]
I remember..
I remember you.. Your reactions when you first started to notice differences in your child. How you would talk about his play skills. “He is such a goofball”, “He is so independent, just wants to do his own thing”, or “We haven’t taught him how to play with that yet”. All said with love and […]
A new path ahead..
It happened so fast.. Just like that, the conversation changed. We have gone fourteen years pushing for progress, pushing to get to the “right level”. But that level has moved now. We have turned left at the fork in the road. We find ourselves looking at different scenery. The path seems longer and is all […]
Who is the true Expert?
Parents often complain about how everyone has “advice” for them on how to raise their children. They are often very protective of their parenting and take offense to suggestions. This is especially the case when it comes from someone who has never had their own children. Things get a little tricky in the special needs […]
The quest for immortality..
I think most people are searching for the “fountain of youth”. They want to live forever. But what you may not be aware of is that this topic is front and center forever in our family. The constant question in our hearts is “who will take care of him when we are gone?”. There is […]
Celebrate on your own terms..
Birthdays are a celebration of the past year and the year to come. People are usually hopeful and excited. There are several birthdays that mean something special. At thirteen, you officially become a “teen”. At 18, you are considered an adult and can vote. At 21, you can drink. Along the way are milestones such […]
Big waves are coming..
We don’t sleep much over here (that’s for another blog, another time). But when I do sleep, I sleep hard, I dream and I sleep walk. I’ve never been a dream journal sort of girl but I do remember and unpack them the next morning. A recurring type of dream that I have been having […]
I learned some moves…
I want to spend some time on something that doesn’t get a lot of attention in the world. Aggression in Autism. I remember early on after Z’s diagnosis, I attended a support group. There were only 6 of us and I was hoping to find some kindred spirits on this path as a special needs […]
All it takes is One person…
I want to share a story. A story about hardship. A story about a mother’s sorrow and determination. A story about society’s unwillingness to help and support others. But most of all a story of hope. This story is about a young boy at the grocery store. A young boy trying to work with the […]
Tilted Axis 