We Can’t Talk to You

No one could have prepared me for 18. Not for how the world would react. Not for the emotional toll. Definitely not for the amount of paperwork and tasks that would be required or the amount of time processes would take. When we first received the diagnosis for Z, I always talked about not receiving […]

The quest for immortality..

I think most people are searching for the “fountain of youth”. They want to live forever. But what you may not be aware of is that this topic is front and center forever in our family. The constant question in our hearts is “who will take care of him when we are gone?”. There is […]